Experiences of Family Vacation with Children Diagnosed with Autism Spectrum Disorder (ASD): Leisure or Work? (Percutian Keluarga bersama Kanak-kanak Autisme: Riadah atau Kerja?)

Fauzunnasirah Fazil, Er Ah Choy, Habibah Ahmad, Susheel Joginder Singh, Noordeyana Tambi, Hamzah Jusoh

Abstract


The goal of the travel and tourism industry is to make all travellers happy. The activities in the sector consistently promote multitudinous benefits, such as wellness, rejoicing, and recuperation. The motivation for family tourists is to indulge in tourism activities that can instil family and social values through a family vacation. However, the vacation experience usually differs for families of children diagnosed with autism spectrum disorder (ASD) compared to regular families of regular children. The development difficulties in the intellectual and social communication of children with ASD involving a spectrum of emotion, namely happy, frustrated, distressed, and restlessness require special attention from their caregivers during vacation. The purpose of this paper was to analyse vacation experiences in families of children with ASD based on the literature of previous studies. The findings indicated that family vacation promotes self-improvement and opens room for learning about the real world in these targeted children. Nonetheless, the meaning of vacation to the parents of these children exudes notions of conflict and complication that locate mixed feelings. The study aimed at increasing the understanding on family tourists with children of special needs with different characteristics that may benefit the tourism providers and the autism therapists to collaborate on various innovative partnerships, producing platforms to facilitate a safe and enjoyable vacation experience to the targeted family as they travel together. Consequently, this effort can help dispel neglect in the social inclusion aspects regardless of the tourists’ physical or developmental conditions.

Keywords: tourism; family vacation; autism spectrum disorder (ASD); developmental difficulty; children.

 

 Abstract

 

Matlamat industri pelancongan adalah memastikan semua pelancong bergembira. Aktiviti-aktiviti yang terkandung di dalam sektor ini secara konsisten membentuk pelbagai faedah, seperti, kesejahteraan, kegembiraan, danpemulihan. Motivasi bagi para pelancong keluarga adalah untuk menikmati aktiviti-aktiviti pelanconganyang dapat membentuk nilai kekeluargaan dan sosialmelalui percutian keluarga. Walaubagaimanapun, pengalaman bercuti kebiasaannya berbeza di kalangan keluarga-keluarga yang mempunyai kanak-kanak yang didiagnosisdengan gangguan spektrum autisme (ASD) berbanding dengan keluarga-keluarga yang mempunyai kanak-kanak tumbesaran normal. Kesukaran perkembangan dalam intelektual dan komunikasi sosial yang dihadapi oleh kanak-kanak ASD melibatkan spektrum emosi, iaitu gembira, kecewa, tertekan, dan kegelishanmemerlukan perhatian yang khusus daripada para penjaga mereka semasa bercuti. Matlamat artikel ini adalah untuk menganalisa pengalaman-pengalaman bercuti di kalangan keluarga yang mempunyai kanak-kanak ASD berdasarkan literatur kajian-kajian yang lalu. Hasil kajian mendapati bahawa pelancongan keluarga dapat mendorong peningkatan diri dan membuka ruang untuk belajar mengenai dunia sebenar kepada kanak-kanak yang disasarkan ini. Walaupun begitu, erti percutian kepada ibu bapa anak-anak ini adalah suatu konflik dan rumit yang menunjukkan perasaan bercampur-baur. Kajian ini diharapkan dapat meningkatkan pengetahuan keperluan khas kumpulan pelancong keluarga yang mempunyai ciri-ciri berbeza yang dapat memberi manfaat kepada pihak penyedia dan ahli terapi carakerja untuk berkolaborasi dalam pelbagai platform inovasi perkongsian, menyediakan platform untuk memudahkan percutian yang selamat dan menyeronokkan kepada keluarga yang disasarkan semasa mereka melancong bersama. Oleh itu, usaha ini dapat membantu membendungpengabaian dalam aspek penyertaan sosial tanpa mengira keadaan fizikal atau keadaan perkembangan pelancong.

Kata kunci: pelancongan; percutian keluarga; gangguan spektrum autisme; kesukaran perkembangan; kanak-kanak.


Full Text:

PDF

References


Abidin, M.S.Z., Sa’ari, C.Z. & Rahman, S.M.H.S.A. 2018. Islamic Psychotherapy Approach for Muslim Autistic Children. Akademika88(1): 65-73.

ADDM. 2020. Community Report on Autism 2020. Autism and Developmental Disabilities Monitoring (ADDM) Network. https://www.cdc.gov/ncbddd/autism/addm-community-report/index.html.

Agovino, M., Casaccia, M., Garofalo, A. & Marchesano, K. 2017. Tourism and disability in Italy. Limits and opportunities. Tourism Management Perspectives23: 58-67. http://dx.doi.org/10.1016/j.tmp.2017.05.001.

Aizan Sofia, A., Jamiah, M.& Noremy, M.A. 2016. The Role of Family in the Lives of Disabled Malaysian Children. Akademika 86(1): 21-30.

Allan, M. 2015. Accessible tourism in Jordan: Travel constrains and motivations. European Journal of Tourism Research10: 109-119.

American Psychiatric Association. 2013. Autism Spectrum Disorder. DSM-5 Autism Spectrum Disorder Fact Sheet.

Amet, L. 2013. Holiday, What Holiday? Vacation Experiences of Children with Autism and Their Families. Autism-Open Access03(03).

Backer, E. & King, B. 2017. VFR traveller demographics: The social tourism dimension. Journal of Vacation Marketing23(3): 191-204.

Backer, E. & Schänzel, H. 2013. Family Holidays — Vacation or Obli-cation ? Family Holidays -Vacation or Obli-cation ? 38(April): 37-41.

Barlés-Arizón, M.J., Fraj-Andrés, E. & Martínez-Salinas, E. 2013. Family Vacation Decision Making: The Role of Woman. Journal of Travel and Tourism Marketing30(8): 873-890.

Buckley, C. 2017. Autism in adults. Autism Research10(6): 319-326.

Bumin, G., Huri, M., Salar, S. & Kayihan, H. 2015. Occupational Therapy in Autism. Autism Spectrum Disorder - Recent Advances.

Capistrano, R.C. & Bernardo, M.A.C. 2018. Mother knows best: exploring the matrilineal influence in family tourism among Filipinos living in New Zealand. Young Consumers19(2): 218-236.

Chu, S.Y., Mohd Normal, S.N.S.A. binti, McConnell, G.E., Tan, J.S. & Joginder Singh, S.K.D. 2018. Challenges faced by parents of children with autism spectrum disorder in Malaysia. Speech, Language and Hearing 1-11. https://doi.org/10.1080/2050571X.2018.1548678.

Cloquet, I., Palomino, M., Shaw, G., Stephen, G. & Taylor, T. 2018. Disability, social inclusion and the marketing of tourist attractions. Journal of Sustainable Tourism26(2): 221-237. http://dx.doi.org/10.1080/09669582.2017.1339710.

Connell, J. & Page, S.J. 2019. Case study: Destination readiness for dementia-friendly visitor experiences: A scoping study. Tourism Management70(May 2018): 29-41.

Curtale, R. 2018. Analyzing children’s impact on parents’ tourist choices. Young Consumers19(2): 172-184.

Deka, D., Feeley, C. & Lubin, A. 2016. Travel patterns, needs, and barriers of adults with autism spectrum disorder: Report from a survey. Transportation Research Record2542: 9–16. https://doi.org/10.3141/2542-02.

Demirdelen, D., Alrawadieh, Z., Zareer, A. & Kizilirmak, I. 2019. Delving into children’s travel dreams: a qualitative investigation. International Journal of Culture, Tourism, and Hospitality Research13(3): 359-367.

Deng, L. 2017. Equity of Access to Cultural Heritage: Museum Experience as a Facilitator of Learning and Socialization in Children with Autism. Curator: The Museum Journal60(4): 411-426.

Emira, M. & Thompson, D. 2011. In the quest for their trust: The perceptions of families on accessing leisure services for disabled children. Leisure Studies30(1): 33-48.

Fikry, A. & Hassan, H. 2016. Characteristics of Autism Center in Malaysia. Environment-Behaviour Proceedings Journal1(4): 75. http://dx.doi.org/10.21834/e-bpj.v1i4.173.

Fletcher, T.S., Blake, A.B. & Shelffo, K.E. 2018. Can Sensory Gallery Guides for Children with Sensory Processing Challenges Improve Their Museum Experience? Journal of Museum Education43(1): 66-77.

Freund, D., Cerdan Chiscano, M., Hernandez-Maskivker, G., Guix, M., Iñesta, A. & Castelló, M. 2019. Enhancing the hospitality customer experience of families with children on the autism spectrum disorder. International Journal of Tourism Research21(5): 606-614.

Goeldner, C. & Ritchie, B. 2012. Tourism: Principles, Practices, Philosophies. Edisi ke-12th. New Jersey: John Wiley & Sons, Inc.

Habibah, A., Hamzah, J., Er, A.C., Buang, A. & Selvadurai, S. 2015.

Appraisal of family-friendly tourism in Malaysia. Tourismos10(1): 37-62.

Habibah, A.& Hamzah, J. 2012. Percutian Famili Bandar di Malaysia: Mengimbas Amalan Era British hingga akhir 1960an. Akademika82(3): 93-108.

Habibah, A., Hamzah, J., Noradila, A., Kadaruddin, A., Nurul Fadhiah, M. & Mohd Fuad, M.J. 2019. Pantai pelancongan mesra keluarga dan tuntutan persekitaran fizikal semulajadi daripada lensa pelancong tempatan. Malaysian Journal of Society and Space15(4): 321-335.

Hamed, H.M. 2013. Tourism and Autism: An Initiative Study for how Travel Companies can Plan Tourism Trips for Autistic People. American Journal of Tourism Management2(1): 1–14. http://journal.sapub.org/tourism.

Hasnah, T., Salmiah, B. & Fadliana, C. 2013. Siri Pendidikan Autisme: Pengajaran Berstruktur. Bangi, Malaysia: Penerbit Universiti Kebangsaan Malaysia.

Hassan, A., Yusooff, F. & Alavi, K. 2012. Keluarga sihat melahirkan komuniti sejahtera: Satu ulasan (A healty family generates prosperous community: An overview). Geografia - Malaysian Journal of Society and Space8(5): 51-63.

He, W. 2005. Introduction: Kinship and Family in International Context. International Journal of Sociology and Social Policy25(3): 1-8.

Hooi, P.M. & Yaacob, N.M. 2019. Accessibility for physically challenged persons in heritage buildings. Journal of Design and Built Environment19(1): 24-39.

Ilias, K., Cornish, K., Kummar, A.S., Park, M.S.A. & Golden, K.J. 2018. Parenting stress and resilience in parents of children with autism spectrum disorder (ASD) in Southeast Asia: A systematic review. Frontiers in Psychology9: 280.

Ilias, K., Liaw, J.H.J., Cornish, K., Park, M.S.A. & Golden, K.J. 2017. Wellbeing of mothers of children with “A-U-T-I-S-M” in Malaysia: An interpretative phenomenological analysis study. Journal of Intellectual and Developmental Disability42(1): 74-89. http://dx.doi.org/10.3109/13668250.2016.1196657.

Jamal, S.A., Aminudin, N. & Kausar, D.R. 2019. Family adventure tourism motives and decision-making: A case of whitewater rafting. Journal of Outdoor Recreation and Tourism25(November 2018): 10–15. https://doi.org/10.1016/j.jort.2018.11.005.

Jenkins, R.L. 1978. Family Vacation Decision-Making. Journal of Travel Research16(4): 2-7.

Kamaralzaman, S., Toran, H., Mohamed, S. & Abdullah, N.B. 2018. The Economic Burden of Families with Autism Spectrum Disorders (ASD) Children in Malaysia. Journal of ICSAR2(1): 71-77.

Kay Smith, M. & Diekmann, A. 2017. Tourism and wellbeing. Annals of Tourism Research66: 1–13. http://dx.doi.org/10.1016/j.annals.2017.05.006.

Khoo-Lattimore, C., delChiappa, G. & Yang, M.J. 2018. A family for the holidays: delineating the hospitality needs of European parents with young children. Young Consumers19(2): 159-171.

Kim, K., Kim, J., Voight, A. & Ji, M. 2018. Listening to the screaming whisper: a voice of mother caregivers of children with autistic spectrum disorder (ASD). International Journal of Qualitative Studies on Health and Well-being13(1): 1-8.

Kozak, M. & Karadag, L. 2012. Who influences aspects of family decision making?. International Journal of Culture, Tourism and Hospitality Research 6(1): 8-20.

Langa, L.A., Monaco, P., Subramaniam, M., Jaeger, P.T., Shanahan, K. & Ziebarth, B. 2013. Improving the Museum Experiences of Children with Autism Spectrum Disorders and Their Families: An Exploratory Examination of Their Motivations and Needs and Using Web-based Resources to Meet Them. Curator: The Museum Journal56(3): 323-335.

Lehto, X.Y., Fu, X., Li, H. & Zhou, L. 2017. Vacation Benefits and Activities: Understanding Chinese Family Travelers. Journal of Hospitality and Tourism Research41(3): 301-328.

Lussenhop, A., Mesiti, L.A., Cohn, E.S., Orsmond, G.I., Goss, J., Reich, C., Osipow, A., Pirri, K. & Lindgren-Streicher, A. 2016. Social participation of families with children with autism spectrum disorder in a science museum. Museums and Social Issues11(2): 122-137. http://dx.doi.org/10.1080/15596893.2016.1214806.

Maye, M. P., Kiss, I., & Carter, A. S. 2017. Definitions and classification of autism spectrum disorders. Autism spectrum disorders: Identification, education, and treatment, 1-23.

McCabe, S. 2020. “Tourism for all?” Considering social tourism: a perspective paper. Tourism Review75(1): 61-64.

Naniopoulos, A., Tsalis, P. & Nalmpantis, D. 2016. An effort to develop accessible tourism in Greece and Turkey: the MEDRA project approach. Journal of Tourism Futures2(1): 56-70.

NASOM. 2020. Our Services. The National Society of Autism Malaysia. Retrieved on 6th March 2020 http://www.nasom.org.my/.

Neo, W.X. & Flaherty, G.T. 2018. Autism Spectrum Disorder and International Travel. International Journal of Travel Medicine and Global Health7(1): 1-3.

O’Brien, S. 2016. Families of Adolescents with Autism: Facing the Future. Journal of Pediatric Nursing31(2): 204–213. http://dx.doi.org/10.1016/j.pedn.2015.10.019.

Özogul, G. & Baran, G.G. 2016. Accessible tourism: the golden key in the future for the specialized travel agencies. Journal of Tourism Futures2(1): 79-87.

Ozonoff, S., Iosif, A.-M., Baguio, F., Cook, I.C., Hill, M.M., Hutman, T., Rogers, S.J., Rozga, A., Sangha, S., Sigman, M., Steinfeld, M.B. & Young, G.S. 2010. A Prospective Study of the Emergence of Early Behavioral Signs of Autism. Journal of the American Academy of Child & Adolescent Psychiatry49(3): 256-266.e2. http://dx.doi.org/10.1016/j.jaac.2009.11.009.

Park, S.Y., Pan, B. & Ahn, J. Bin. 2020. Family trip and academic achievement in early childhood. Annals of Tourism Research80: 102795. https://doi.org/10.1016/j.annals.2019.102795.

Potvin, M.C., Snider, L., Prelock, P., Kehayia, E. & Wood-Dauphinee, S. 2013. Recreational participation of children with high functioning autism. Journal of Autism and Developmental Disorders43(2): 445-457.

Rizk, S., Pizur-Barnekow, K. & Darragh, A.R. 2011. Leisure and social participation and health-related quality of life in caregivers of children with autism. OTJR Occupation, Participation and Health31(4): 164-171.

Rojas-de-Gracia, M.M., Alarcón-Urbistondo, P. & González Robles, E.M. 2018. Couple dynamics in family holidays decision-making process. International Journal of Contemporary Hospitality Management30(1): 601-617.

Román-Oyola, R., Figueroa-Feliciano, V., Torres-Martínez, Y., Torres-Vélez, J., Encarnación-Pizarro, K., Fragoso-Pagán, S. & Torres-Colón, L. 2018. Play, playfulness, and self-efficacy: Parental experiences with children on the autism spectrum. Occupational Therapy International2018

Roy, M. & Dillo, W. 2018. Quality of life in autism spectrum disorder. Journal of Autism5(1): 2.

Sarol, H. & Çimen, Z. 2015. The effects of adapted recreational physical activity on the life quality of individuals with autism. Anthropologist21(3): 522-527.

Schänzel, H. & Jenkins, J. 2017. Non-resident fathers’ holidays alone with their children: experiences, meanings and fatherhood. World Leisure Journal59(2): 156-173.

Schänzel, H.A. & Yeoman, I. 2014. The future of family tourism. Tourism Recreation Research39(3): 343-360.

Schänzel, H.A. & Lynch, P.A. 2016. Family perspectives on social hospitality dimensions while on holiday. Tourist Studies16(2): 133-150.

Schänzel, H.A., Smith, K.A. & Weaver, A. 2005. Family Holidays: A Research Review and Application to New Zealand. Annals of Leisure Research8(2–3): 105-123. http://www.tandfonline.com/doi/abs/10.1080/11745398.2005.10600965.

Schänzel, H.A. & Yeoman, I. 2015. Trends in family tourism. Journal of Tourism Futures1(2): 141-147.

Sedgley, D., Pritchard, A., Morgan, N. & Hanna, P. 2017. Tourism and autism: Journeys of mixed emotions. Annals of Tourism Research66: 14-25. http://dx.doi.org/10.1016/j.annals.2017.05.009.

Sitimin, S.A., Fikry, A., Ismail, Z. & Hussein, N. 2017. Work-family Conflict among Working Parents of Children with Autism in Malaysia. Procedia Computer Science105(December 2016): 345–352. http://dx.doi.org/10.1016/j.procs.2017.01.232.

Sivabalan, T., Zakaria, E. & Amin, A.S. 2018. Exploring Coping Strategies of Mother in Taking Care of a Child with Cerebral Palsy Disability. Akademika 88(2): 121-134.

Solish, A., Perry, A. & Minnes, P. 2010. Participation of children with and without disabilities in social, recreational and leisure activities. Journal of Applied Research in Intellectual Disabilities23(3): 226-236.

Srnec, T., Lončarić, D. & Prodan, M.P. 2016. Family Vacation Decision Making Process: Evidence From Croatia (July): 432-445.

Stacey, T.L., Froude, E.H., Trollor, J. & Foley, K.R. 2018. Leisure participation and satisfaction in autistic adults and neurotypical adults. Autism23(4): 993-1004.

Therkelsen, A. 2010. Deciding on family holidays – role distribution and strategies in use. Journal of Travel& Tourism Marketing 27(8): 765-779.

Tutuncu, O. 2017. Investigating the accessibility factors affecting hotel satisfaction of people with physical disabilities. International Journal of Hospitality Management65: 29-36. http://dx.doi.org/10.1016/j.ijhm.2017.06.002.

Walton, K.M. 2019. Leisure time and family functioning in families living with autism spectrum disorder. Autism23(6): 1384-1397.

Weir, E., Allison, C. & Baron‐Cohen, S. 2020. Autism in children: improving screening, diagnosis and support. Prescriber31(1): 20-24.

Whittington, A. 2014. Family vacation 2050: Socially and technologically-Driven scenarios of the future of family travel, recreation and tourism. Tourism Recreation Research39(3): 379-396.

Wu, M.Y. & Wall, G. 2016. Chinese Research on Family Tourism: Review and Research Implications. Journal of China Tourism Research12(3-4): 274-290. http://dx.doi.org/10.1080/19388160.2016.1276873.

Yousaf, A., Amin, I. & Jose Antonio, C. 2018. Tourists’ motivations to travel: A theoretical perspective on the existing literature. Tourism and Hospitality Management24(1): 197-211.

Zenko, Z. & Sardi, V. 2014. Systemic thinking for socially responsible innovations in social tourism for people with disabilities. Kybernetes43(3): 652-666.

Zulkanain, M.I., Azree, M. & Mydin, O. 2019. Autism friendly classroom to stimulate learning setting. “Eftimie Murgu” Reşiţa (1): 1-9.


Refbacks

  • There are currently no refbacks.


ISSN: 0126-5008

eISSN: 0126-8694